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Hello, everyone!
I know it's been a long time since I've posted, but so much has happened. First, I was able to go into a remission state...still very tired, still had aches, but there was no difference in if I was on my antibiotic pulse cycle or not -- I was stabilized no matter where I was in the cycle and was starting to feel so much better, ready to join the gym.
SCREEEECH! I got noped out of that, but for good reason. If you're going to put your life on hold, do it once if you can. Let's get as much out of me as we can. It's virtually impossible to be Lyme-free, but the fewer bacteria hiding out in your body, the better chance you have of fighting off the flu or other such things without Lyme coming BACK out of its lair and going.
So, on to the next phase. Let's get sick again by dragging out the spirochetes who had built "houses" around themselves, called biofilms. With any luck, for me this phase will last a year. I'm about a third of the way there. And then who know what will happen? Can't think that far ahead.
To do that, I'm taking things that dissolve their homes ("a plague on both your houses!" ~~ Mercutio, in the most incredibly awesome Baz Luhrman version of "Romeo and Juliet") and let the antibiotic pulse cycle start its killing again.
The result...you feel like holy hell. But even in this, I can see improvements, small, but there, as I track my symptoms daily, as should you). I've discovered that something is giving me hives for a few days. Tracking that. I discovered that weather has a HUGE impact on me. Yesterday my elbows hurt. Whoever heard of that? But tonight, I'm up, writing, and hoping to take the family to the movies tomorrow. That is the ONLY thing I have planned, by the way. I've learned the hard way not to push too hard when I feel more normal. You pay for it dearly the next few days.
And of course, any spare time I spend with my family, because I never know -- none of us know -- how much time we have, and I'll be honest. I'm fighting a hinky gallbladder (surgery September 8th...more on how that relates to Lyme later) AND lyme, and I've told my husband numerous times, "this must be what dying feels like". Then I try to close my mind off from that and imagine living a long, fulfilling, healthy life.
That being said -- it is more often than not that it's VERY difficult for people to even begin proper treatment. It shouldn't be that way.
I found this short clip, and I hope you take five minutes to watch this. It explains why the government is suppressing Lyme disease. There are far more reasons, and they get more and more complicated, but this is a quick, simple explanation.
Apparently there's no money in making people well.
