Thursday, February 18, 2016


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I'm tired of fighting.

I'm tired of being afraid to write my story as a mom, a wife, a business owner, who got knocked on her ass by a disease that the CDC refuses to recognize can go chronic.

I'm afraid because while social media has been a blessing to me, connecting me to the world and even being responsible for meeting not one but three doctors who have helped me along this path.  Three people on Facebook sending me messages, calling their doctor, helping me feel I'm not alone in this.

Then I see the thousands and thousands of comments about Yolanda Foster and her vocal story and I feel sick at the things people feel no problem in saying because they are hiding behind an avatar.

I'm tired.

But I fight on.


  1. Huge hugs Lori. It is exhausting to have to fight all the time - but remember, we've got your back! X

  2. I've not heard of Yolanda but I'm guessing people are saying terrible things. As someone with a chronic and invisible disease I too have been judged. What a shame people are so critical of a circumstance of which they do not know.

  3. Rest. Surround yourself with as much positivity as possible.

  4. I completely understand my fellow Lymie comrade. Honestly I couldn't care what other people think about my illness except those that are close to me; yes what people say carelessly without thinking can anger or hurt me but then I just remind myself that THEY aren't going through this personal hell. I am. I wake up every day contemplating on if I even want to get out of bed. I deal with the pain whether it's a level 3 or a level 10+. I am the one that has to make the decisions whether to cook breakfast or shower for the day. ME. And YOU are the one who does that too, nobody else. You're strong my friend because you have to be. Just remember that!


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