Saturday, April 16, 2016

Lyme's Secret Patients

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The following is a copy of an email I received from

You can read it here and click the links here.

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IDSA won't release names of "patient representatives" on Lyme panel. What are they hiding?

Last year, joined with other groups in protesting that the IDSA's "Lyme patient representative" didn't have Lyme or know anything about it. 

In response, the IDSA now says it has appointed four more patient representatives, but they won't tell anybody who they are. READ MORE.

IDSA says new guidelines process will take 2-5 years. Why does CDC still endorse the old ones?

Although IDSA's Lyme guidelines have been removed from the National Guidelines Clearinghouse for being out-dated, the CDC continues to endorse them. READ MORE.

Ask your senators to co-sponsor Lyme bill, S. 1503

The Lyme and Tick-Borne Disease Prevention, Education, and Research Act of 2015 is still in committee. Please use our Voter Voice system to contact your senators, asking them to co-sponsor this important legislation. Details here., publisher of The Lyme Times, is the Lyme community's leading source of news, information, and health policy analysis. 
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